Showing posts with label Disability. Show all posts
Showing posts with label Disability. Show all posts

Saturday, April 28, 2018

Thing 19: Podcasts

At last! I thought. I’ll finally get around to hearing a "DisVisibility" podcast (and finish a Thing as well).

Not immediately. I opened up the podcast app on my phone, and couldn’t find a listing for the series at first. @DisVisibility is actually the Twitter handle of the Disability Visibility Project, the activist site “dedicated to recording, amplifying & sharing disability media & culture” and the source of the podcast. Trying a search for “disability” brought up the Disability Visibility podcast itself. It’s always good to have reference skills.

Episodes to date range from 21 minutes (immigration and disability) to 36 minutes (two of this length, one on the ADA, the other on the BBC America science fiction drama Orphan Black). Transcripts are posted for each episode (enabling hearing-impaired people to access the content). I picked what at first glance could have been a light-hearted topic: “Disabled Comedians,” episode 21.

Of course, the nature of disability is that there are always external challenges people need to overcome. Danielle Perez and Maysoon Zayid, the guests interviewed, made it clear that many facilities for comics aren’t accessible, which hinders both their ability to build a following through live performance and their ability to get booked for gigs. In addition, the conversation, perhaps inevitably, touched on advocacy--very fitting for this section of the MOOC. Zayid remarked on using comedy to change negative perceptions of Arabs and Muslims after the September 11 attacks in the U.S. Perez, a Latina bilateral amputee who uses a wheelchair, noted that when she can make people laugh, she can shift their perspectives on who can be a successful comedian.

I won’t say I’m completely smitten by podcasts, but their portability is definitely a selling point. My phone contains a collection of Wait Wait... Don't Tell Me! episodes, which come in handy during long bus rides. 

Note: Like some other participants, I did not find a way to enter a rating for the podcast.

Friday, February 9, 2018

Thing 14: Personal Information Management

Personal information management is an ongoing challenge for me.

I’m a survivor of a brain tumor and a subsequent stroke that’s left me with encephalomalacia—softened, inactive, even dead nervous tissue—in both frontal lobes of my brain. (For those of you somewhat familiar with functional brain anatomy, my best guess is that most of the damage is in my dorsolateral prefrontal cortex. Thus I can’t regale you with tales of binge drinking or compulsive sexual behavior. You’d have to settle for far more boring accounts of finding myself unable to mentally calculate tips for cab drivers, or forgetting the proverbial milk when buying groceries.) 

Having brain surgery in one city, recuperating in a place five hours away, and returning to a home a full day’s travel from there, I fell through the cracks in the healthcare system. I wasn't referred for a neuropsychological assessment after my operation, nor was I sent off to a rehabilitation specialist to address the “executive function” issues that emerged—a less than optimal experience. Consequently I had to figure out my own approach to organizing my life, and I’m always interested in hearing about alternative tools and approaches.

Rehabilitation neuropsychologist Pamela S. Klonoff described paper datebooks as “the foundational compensatory tool after acquired brain injury” (Psychotherapy After Brain Injury; Principles and Techniques, Guilford Press, 2010, p. 126). Michelle Ranae Wild has published books on “making cognitive connections” using iOS and Android devices. In the abled world, “bujos” or self-designed “bullet journals” are in fashion. Clearly, there’s no single universal or optimal solution for personal information management problems.

What do I use (for now)? Mostly a combination of a bullet journal, the suite of Google apps I need to use for work, and two apps that came with my iPhone—Reminders and Notes. For shopping lists, I use the sophisticated technique of grabbing a piece of scrap paper and pen, then quickly surveying every room in my residence to see what needs to be restocked.

I tried a couple of the apps recommended for this Thing, and quickly eliminated Remember The Milk. The free version requires access to a data plan or Wi-Fi. This was an unwelcome contrast to the Google apps that permit offline work. Inexpensive data access is not a reasonable assumption for life here in the boondocks. There are literally times I have to stand at one particular window in my home and wave my phone around to connect to my data service. And with only two transformers for the entire town, all it takes is one squirrel or raccoon jumping onto the wrong part of the equipment to produce an hours-long power failure and no free wireless hotspots for a couple of miles in every direction.

I’ve been using Feedly (recommended at the start of this MOOC!) for a few months—albeit on my workstation rather than my phone—and find it a useful addition to my routine, although I do have to fight the urge to subscribe to feeds in packrat fashion. Pocket and Evernote look interesting, but the start of the semester means it will be best to revisit them after the pace at work slows down a bit.

Friday, September 15, 2017

Thing 2: Write Your First Blog Post




[Text of screenshot: As four white women, we recognize that the editorial team can only offer a limited viewpoint on these issues and we are working proactively to engage a diverse set of perspectives. [Bolded text] We aim to provide space for those with different work experience such as non-tenure track librarians, technical services librarians, and library workers without the librarian title, as well as those with different lived experiences, such as librarians of color, non-binary, and LGBTQ+ folks.]

Last month, a team of early-career librarians tweeted the arrival of a new online community for library researchers. They presented themselves as an inclusive group, committed to social justice, and judging from Twitter commentary, other librarians agreed. Were they as inclusive as possible?

I am also a white female librarian, but I belong to the one-fifth of all adult Americans who have a disability—in my case, multiple disabilities, all non-visible. For this post, I’ll focus on a cluster of chronic musculoskeletal injuries, acquired thanks to a combination of short stature and a working lifetime spent in ergonomically inappropriate settings. As a disabled person who can and does hold a job, my “different lived experiences” include not only pain, fatigue, and restricted range of motion, but also unsupportive and even openly hostile workplaces.

Unless or until the current U.S. government severely undercuts the Americans with Disabilities Act, most library worksites are required to provide “reasonable accommodations” so that I can perform my job. Sounds good, but it’s the employer that gets to define “reasonable.”

Standard office chairs leave my feet swinging in mid-air, as if I were a child, and strain my lower back. Yet during my first year at one library, management did not consider even a cheap footrest to be “reasonable.” Instead, administrators helpfully directed me to the mailroom, where I had to rummage for used cardboard boxes of just the right height to support my legs. Sometimes I could make do with a box for an entire month before it sagged too much to serve. I finally obtained a footrest—but only after writing a formal request explaining that recycling boxes was not a permanent solution.

In another job, a manager ordered me to repeatedly reach overhead and pull heavy books from the topmost shelves of the stacks as part of a weeding project. This action inflamed both of my already-injured shoulders, so I requested a few hours of student employee assistance. On hearing of this, an individual in my chain of command informed me that pulling those books was a “professional” responsibility. Getting help from somebody else was not “reasonable” accommodation until I obtained a note from my primary care provider—explaining I would not grow taller before deadline. Getting that note, of course, required payment at a clinic—an installment of the “crip tax” constantly levied on disabled people.

Library employees who do not share my experiences may wonder why I didn’t turn promptly to workers’ compensation in both of these cases. For readers blissfully unaware of how that system operates: when you report a work related overuse injury, you must account for ALL your life activities involving the afflicted body part(s), not just the actions you perform at work. Cooking, housework, hobbies like playing the piano or knitting—according to workers’ compensation staff, those are the reasons I develop pain that keeps me awake at night. Without fail, gatekeepers tell me to buy meals instead of preparing them myself, or to hire someone to clean my home: more crip tax.

Furthermore, workers’ compensation offers minimal treatment and rehabilitation. As the designated physical therapist told me during my last go-round, the objective is to move employees just far enough towards recovery so that they can return to work full time. If I want to be able to do anything utterly frivolous—like cook my own dinner or push a vacuum cleaner around, without pain, after a day at work—I need to visit clinics outside the system, paying still more crip tax.

If you are truly interested in diversity or social justice, don't assume that middle-aged (or as my officemates say, “old”) white co-workers have no unique insights or experiences. We may not feel comfortable revealing one or several disabilities, especially if you are constantly informing us how “privileged” we are. Disabled people are everywhere, including the library. And you’re not very inclusive if you won’t even acknowledge that we exist.